Connect
← Return to Loss of awareness of where your body is in space
Discussion
Loss of awareness of where your body is in space
Neuropathy | Last Active: Nov 9, 2020 | Replies (23)Comment receiving replies
Hank, You are so nice to ask me about my current pain. I'm taking Pregabalin 50 mg in Am & Pm, Nortriptyline (pamelor) 50 mg in Am, Rx: Baclofen 5 mg - take 1/2 tablet 2X day as needed for pain, Most of my pain is coming from muscle stiffness in both legs & feet, From 9:00 am - 12:00 pm- Window of time when I go to park & walk, do PT exercises, go home and do stretches on a mat, from 12:00 pm -11:00pm my pain level starts to increase to a 8. My Neurologist Rx: Baclofen (muscle relaxer) but side effect is sedation. Hank, if you were me what would you do to decrease my pain level? You seem to have a lot of experience helping your wife manage her PN.- Thank you 👱♀️ interested in your feed back
Replies to "Hank, You are so nice to ask me about my current pain. I'm taking Pregabalin 50..."
Connect
Hi @lweave2
Two days ago I posted for someone a list of the things my wife is doing in her life to deal with her pain, here is the link to that post:
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/?pg=204#comment-438794
Some of the things on her list are specific to her primary pain area which is her neuropathic burning feet. Physically it sounds like you are doing plenty, what a great sounding program of walking and PT related exercises. I am impressed.
Linda is allergic to many drugs. She does not tolerate others very well either. She's had some bad reactions to a few different things. So she just says no to drugs at this point. That said, some of the things on her supplement list might help you. Among these I would consider Theracurmin (from the company Integrated Therapeutics) for inflammation. Possibly Milk Thistle to help your liver deal with the toxicity of the drugs you are taking. Also are you taking magnesium (citrate, glycinate or malate)? Could be good for the stiffness. Linda is taking PEA (palmitoylethanolamide) as a possible help for the pain from her PN but she has not yet taken it long enough to know whether it will help her.
She (and I) also take several mitochondria boosting supplements (mitochondria are the source of all energy in the body). Not sure you're interested in those, just tossing it in here. Some of them do seem to boost energy (I can point you to a discussion if interested). Wish I had something more to suggest. Oh, one other thing she is doing is a cold laser light treatment on her feet. The laser, bought on Amazon, is uber expensive, but so far, after 2.5 weeks, she is noticing some changes happening in her feet, possibly for the good. We'll see. Maybe using it on the offending muscles in your legs could benefit you, who knows. If you are interested, here is the item on Amazon: https://smile.amazon.com/LaserTRX-Therapy-Premium-Technology-Combining/dp/B07RGFKBPK/ref=sr_1_1?dchild=1&keywords=laser+trx&sr=8-1
You can also find it discussed on Connect, just search for LaserTRX in the search window.
Hope some of this is helpful for you. Best, Hank