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Loss of awareness of where your body is in space

Neuropathy | Last Active: Nov 9, 2020 | Replies (23)

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@steeldove

@lweave2 You described it so well! As neuropathy has moved upward in both legs up to my waist and both hands, both numbness and pain are causing those strange sensations in my body, and the sense of losing control of my body. I wish I could be more encouraging, but until research gets serious about discovering causes and real treatments for neuropathy, I'm afraid we're going to be "weightless"

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Replies to "@lweave2 You described it so well! As neuropathy has moved upward in both legs up to..."

Steeldove, Thanks for sharing your experience. I had physical therapy the other day and asked my PT if he had treated other patients that have a loss of wareness where they stand. He said many patients with PN come in the clinic feeling the same way. Its a very akward feeling that I'm trying to adjust to every day. The more I'm outside in a wider open space the more I get this feeling. When I'm working in a smaller closed space like in my kitchen or living room the less I feel this way. Keep Plugging on!