@jesfactsmon
Hi Hank! Thanks for your kind words and advice, I will definitely check out the GI Group.
Regarding my support system, both my parents have always been very hands on and have done whatever they could to get help for me and pay for my treatments. They understand my dietary limitations, cook for me every day, and don't ask much of me when I'm sick. There's plenty of history in my immediate family regarding illnesses such as Hypo and Hyper tension, diabetes, several forms of cancer, Celiac disease and GERD, but no one seems to have experienced what I have.
I unfortunately don't live in the states but will be arriving in January (for college). My parents have always told me that maybe once I'm in the states and have a US medical insurance, doctors will run better, more extensive tests and find out what is wrong. I live in Honduras and while there are plenty of good doctors, they haven't been much help.
I have read much about GI issues, respiratory ones and even Psychology, and it baffles me that every doctor seems to arrive at a dead end, at which point they refer me to a gastroenterologist who prescribes Nexium, prescribe it to me themselves, or say it's all in my head.
I won't lie, I'm tired and frustrated, but your words and acknowledgement help more than you know.
Have a great day Hank 🙂 ,
Emily
@emilymahomie .
So your Nexium treatment will be over soon? That is good, especially if it is not helping much as Nexium can cause it's own problems I have read.
Are you planning to come to the US by yourself? If so, and as you say your parents do not ask much of you as you often can not do much, just how is that going to work? So far what I am hearing is you have a debilitating issue of a serious pain in your chest area which a large number of doctors can not diagnose. You say you can't function with this issue. Yet you plan to come to the US (alone?) and start school. Then you will seek medical help here. These are the basics of what I am hearing. First of all I think you need to have somebody accompany you when you come here. Maybe one of your parents is coming as well? And in the next 3 months before you begin this new adventure I sure hope you find some way of coping with this problem you have, because beginning a new life at a new school in a new country does not sound very easy when you are suffering a serious health issue. Maybe substitute foods like Lori has suggested and wean off the Nexium.
Emily, you may have this all thought out better than I'm thinking. I sure hope so. But I can only respond to what you have told us here and it sounds murky. With covid are you even sure your school will be open? Where is your school located?
Please do try to spend time reading the posts over in the Connect GI group, see if there is someone who can offer you some advice there. I started reading posts about neuropathy on my wife's behalf and I have learned a lot from being on here. I am concerned for you and hope you find some answers to you problem.
Best, Hank