Hi @lorettat, I wanted to take a moment and welcome you to Mayo Clinic Connect. I did get your private message, but I am so glad you decided to share your story with the group. Connect has lots of members that share your similar experiences. I'd like to invite @anniejam, @twocents, @degarden_girl, @cobweb, @Drew944, @anniejam, and @crhp194 to join your conversation and share what they have experienced. I am so sorry you are dealing with constant pain, lack of sleep and problems with insurance while dealing with this diagnosis.
@lorettat, I know you mentioned that you were started on a medication. Were you able to still start it given the high price? Did you ask the pharmacy if there was a generic form that the doctor could call in instead?

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