Dearest sueblue, one of my best friends wears a "suit" for her scoliosis and it actually has helped a little bit. I will ask her more about it and get the info to you.
She uses some alternative medicine. I can't recall if the suit was covered by insurance at all.
Is there no brace you can wear to lift your body so your lungs can expand more? I will also ask her what if any other options she's found in her search.
This might be way off here but my friend who had muscular dystrophy had a rod inserted into her spine to prolong her life. Harrington rod?? It's been so many years since the Lord called her home that I can't remember the name.
I just went back and re-read several messages us in the group sent to you with our suggestions about physical therapy, etc.
I fear that I may have offended you because of course you are doing everything you possibly can and are fully aware of PT! I am so sorry if you felt badly about that.
Take good care dear friend. I will be praying for you for big time relief, comfort for your soul and options to present themselves to help your lungs expand.
Many blessings, Sunnyflower 🙏😊🌹
Thank you and of course I am not offended. I have gone to PT to try to slow it down but then I fell last Feb and broke my hip (hip replacement) and my shoulder in 4 places so was in rehab until some time in March just when covid was ramping up so as a result I got no PT even for that and had to figure out my own PT beyond what i was taught in rehab. As far as a rod I also have severe osteoporosis and the ortho said screws would not hold because of that so I am at a loss. I also must have jarred my spine when I fell as I have noticed my breathing is worse now so it is probably moving a bit faster than I had hoped. I have a POC for oxygen but since it is a "chest wall" proalem and not a lung disease the pulmonary doc said it is only to make me feel better not to prolong my life. Also he said now with covid do not go anywhere with it like a store or doc office, etc as it filters out pollen and dust but not bacteria and viruses so I cant even use that to go anywhere and at this point so far not getting a tank as dont want to be near any stranger. Pulm said if I get covid I wont make it definitely so just call me a recluse. My daughter grocery shops, throws the bags in the door and runs away even tho she has a mask on. I am so sick and tired of covid. Thanks for hyour blessings. Much appreciat4ed. Hugs