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severely bent over

Bones, Joints & Muscles | Last Active: Oct 21, 2020 | Replies (29)

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@sueblue

I am glad that it is not her spine so maybe they can do something for the muscles with this second surgery. I only have 30% of my lung capacity from severe scoliosis but there is nothing they can do to stop the spine. I was told basically that I will at some point suffocate to death. My diaphragm is up in my lungs and my spine is also bending left towards my heart. Being deformed either way is bad for the lungs and I am hoping she has a better chance than me.

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Replies to "I am glad that it is not her spine so maybe they can do something for..."

Dearest sueblue, one of my best friends wears a "suit" for her scoliosis and it actually has helped a little bit. I will ask her more about it and get the info to you.

She uses some alternative medicine. I can't recall if the suit was covered by insurance at all.

Is there no brace you can wear to lift your body so your lungs can expand more? I will also ask her what if any other options she's found in her search.

This might be way off here but my friend who had muscular dystrophy had a rod inserted into her spine to prolong her life. Harrington rod?? It's been so many years since the Lord called her home that I can't remember the name.

I just went back and re-read several messages us in the group sent to you with our suggestions about physical therapy, etc.

I fear that I may have offended you because of course you are doing everything you possibly can and are fully aware of PT! I am so sorry if you felt badly about that.

Take good care dear friend. I will be praying for you for big time relief, comfort for your soul and options to present themselves to help your lungs expand.

Many blessings, Sunnyflower 🙏😊🌹

@sueblue You may be interested in looking at Myofascial release therapy. This is a hands on physical therapy to release tight muscular tissue, and it takes many sessions to release layers of tissue that have been stuck for years. It's not surgery, and it may be able to help. That's a guess on my part, but you could try it and see if you get any improvement. I have done a lot of this myself for thoracic outlet syndrome which makes my chest and neck muscles too tight and it can restrict my breathing too. You might be interested to know that my MRI reports and imaging used to show what the doctor called a slight functional scoliosis and he could see my spine bending on my back. The MFR therapy has helped a lot, and the reports no longer mention this at all and my bulging thoracic disc has realigned itself and stopped restricting my movement. This may give you some hope and some relief, not an overnight success, but possibly steady gains if you keep at it. I do a lot of stretches myself. It's not surgery. It's holding a shearing motion on the tissue and waiting for it to release. The bones go where the muscles tell them to go, and because of injuries, scar tissue, surgical scar tissue restrictions, and bad habits, our bodies can start to get stuck and they no longer move properly. MFR has helped me a lot and I've been at it for several years and it gets the body moving better. Here is some information. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

@sueblue I am so sorry to hear that. My prayers go out for you