← Return to New to Cytoxan (cyclophosphamide)—advice and help appreciated

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@becsbuddy

@markwroberts Thanks so much for responding! You’ve eased my mind already. I remember Cytoxan as a very powerful drug that caused lots of side effects. My real problem, I think, is that I just can’t come to terms with having the autoimmune disease in the first place . I know I have to accept the disease and treatment , so I can get on with life. You letter has helped, thank you.
We’re you able to get your disease quickly diagnosed or was it a long process? Autoimmune diseases are just no fun!

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Replies to "@markwroberts Thanks so much for responding! You’ve eased my mind already. I remember Cytoxan as a..."

Becky – I noticed you posted about CLIPPERS, and then this "I just can't come to terms with having the autoimmune disease in the first place". I'm just writing a short piece about how having this rare condition feels and would love to connect – I too have such trouble with accepting. Are there more folks here diagnosed with CLIPPERS? Bill Crum has a blog in the UK I could share. We could also ask @colleenyoung if we could have a group set up? thoughts? @becsbuddy and @colleenyoung ? Thanks – I'm reconnecting with Mayo now…