← Return to Why test for neuropathy if there is no cure?

Discussion

Why test for neuropathy if there is no cure?

Neuropathy | Last Active: Apr 4, 2021 | Replies (87)

Comment receiving replies
@catharbert

Peggy, I have sent an email to the Foundation for PN asking about making the general public more aware of PN. Their website states that their mission is
Serving as the premier resource of information for patients, their families and healthcare providers
Accelerating a cure for peripheral neuropathies
Funding collaborative efforts of leading scientists
Raising awareness of peripheral neuropathy

You can see that they want to "raise awareness" but I'm not sure how they are doing this to the level needed to acquire the kind of support needed.
I am sure they are very aware of this blog and they have been cited in posts I have seen here. I just think they are the logical place to start and others on this blog may wish to contact them as well. I am not a representative for this group, just had this idea and hope something comes of it. Thanks for lighting a fire under me. I have been thinking about this for awhile without any idea what can be done and still don't know. Maybe all that can be done is already being done, but clearly there are many of who are frustrated and suffering for lack of a real diagnosis, effective treatments, or ultimately a cure. And we are just a small group. I'm sure that the statistics on PN would show thousands of people debilitated from this and many more undiagnosed. I will let you know if I receive a response from the FPN. In the meantime we all need to learn more about the Foundation. Thanks again Peggy.

Jump to this post


Replies to "Peggy, I have sent an email to the Foundation for PN asking about making the general..."

Peripheral-neuropathy is the greatest cause of death in the world, mainly as a result of a fall. Unfortunately it cannot be cured or relieved by any known medications, be they injections , tablets or ointments. However people with our problem virtually persecute our doctors for a solution, and there are a multitude options, that MIGHT JUST HELP? The very wealthy giant pharmaceutical manufacturers of the world continue to pump out hope, to keep the dollars flowing in. These companies finance and or assist education of doctors, Foundations , journalists etc. Highly prestigious universities, and elite research organisations
have now agreed that ii there IS a way to cure, either partly or fully, including pain relief right now. It is by the practice of Neuroplasticity. I have , and believe it also. As an example, I have suffered for years from an itchy back. I have visited many doctors and specialists. The main advice has been expensive ointments etc. The cost to me including pharmacists, doctors, specialists, travel costs me is well over a thousand dollars. Once I researched Neuroplasticity, I was convinced that the brain is plastic, I have committed myself to daily reading and practice of it. Getting back to my itchy back, to my utter dismay after about 3 weeks of practice, it has disappeared completely , and has not cost me a cent. The massive pharmaceutical companies would go broke if all people like us used Neuroplasticity. Medical Practitioners, pharmacy retailer's profits would take a dìve, staff numbers also. The sitation is a bit like the tobacco denial disaster. Look at my previous post to get detail on the books , authored by Dr Norman Doidge, that convinced me.