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mechanicjesus (@mechanicjesus)

Why test for neuropathy if there is no cure?

Neuropathy | Last Active: Apr 4, 2021 | Replies (87)

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@avmcbellar

Hi @jeffrapp I agree with the term idiopathic. To me, a doctor may not know the cause but it doesn’t mean that a patient can not think back to determine potential causes through the process of elimination. It is similar to having an allergic reaction which I never had up until recently. Within a week I found the culprit. I did not waste time going to doctors for questions I can ask myself.
Neuropathy caused by a vitamin B12 deficiency can become permanent if not treated early. In my case, my neuropathy was the result of the last surgical repair for my ruptured AVM. It was a circulation issue involving the embolization of blood vessels. I have learned to deal with it. Luckily, it has only affected the left side of my body from head to toe. I have found supplements that help with the burning pain. The pain differs day to day. I feel we all do the best we can with our ailments(we know our limitations) so we can remain somewhat independent. Toni

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Replies to "Hi @jeffrapp I agree with the term idiopathic. To me, a doctor may not know the..."

Whatever the cause of your idiopathic neuropathy, when your pain level interferes with living your life, it may be time to focus on relieving the pain. This June 2019 article from Foundation for Peripheral Neuropathy is worth a read: https://www.foundationforpn.org/2019/06/10/neuromodulation-for-refractory-neuropathic-pain/?blm_aid=120498
Incidentally, some of the newest devices are MRI compatible.

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