Welcome to Connect @mechanicjesus. We are glad to be your hosts as you begin to explore the treatment options for neuropathy. Our mission is to improve the quality of life for every member of Connect. We do this by listening and learning from you. Then we introduce you to other members who have encountered the same or a similar situation and condition. I serve as a member mentor for the neuropathy group of patients, caregivers, and providers.
At this time when more of us are living so much longer, we are pretty much shocked by the fact that we pay for those extra years and even suffer through them.
We hear about the progress being made with regenerative medicine and realize that age-related conditions are not the first priority. In the Cancer clinic at Mayo, surgeons are performing oncoregeneration where healthy muscles are trained to function like the muscles that had to be removed because of cancer.
So when will it be our turn....us neuropathy folks? We need to know more, study more, and take some baby steps. We need to support the medical communities efforts. In so doing we can nudge and coax our body to just be there for us and perform with less discomfort. What are you most disturbed by at this juncture? Do you have fears of becoming more disabled and forced to live with more pain?
What one thing brings you the most joy? When you get back to me, I will see if somewhere we don't have some members who have walked your path and maybe are even party to your disappointment that there is no quick fix or permanent fix.
May you be free of suffering and the causes of suffering.
Chris
I don't fear the pain just grow weary of it. When it is at a level 10 it does get some extra respect. The thing that brings me joy is my wife she is always there to help me.