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Celebrating an antibiotic-free year

MAC & Bronchiectasis | Last Active: Nov 24, 2020 | Replies (105)

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@gej53

Morning! I experienced unrelenting coughing. They tried treating me as if I were experiencing allergies. My medical doc ordered a cxr and sent me to a pulmonologist. He did a CT and felt strongly I had MAC from the presentation of the CT. I had a bronchoscopy and he did biopsies and washings and they all returned no growth so he is treating the bronchiectasis. I still worry about the MAC. The nebulizing with a vest it the only thing that helps me clear my lungs. When I asked about 7% he felt it would give me bronchospasm. I am going to ask him again in January. It was around $40 for 60 vials. I am alternating it with my 3% to make it last longer. Since I did well with it I hope it will give me a script for it. I guess this is a lengthy response for asking the price :). I also have lymphocytic colitis so am scared to death to think about taking the ATB necessary to treat MAC. So far my CT scan has been stable from the previous year. Guess a little tiring to neb but am thankful that so far it seems to keep my chest stable. I still cough but nothing compared to my initial presentation. Sorry so wordy. You have a great day too!!!

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Replies to "Morning! I experienced unrelenting coughing. They tried treating me as if I were experiencing allergies. My..."

Hi! Thanks for the information. Once again, I find myself having another medical condition in common with you-lymphocytic colitis....it’s seemingly uncanny how we have these similarities. Also, I have have not yet faced any infections requiring long term treatments, yet. I hope we can stay well😊. Have a nice evening!