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Celebrating an antibiotic-free year
MAC & Bronchiectasis | Last Active: Nov 24, 2020 | Replies (105)Comment receiving replies
Hi migizii, your post sounds exactly like me. When I first started going to the pulmonologist he asked me how much I coughed up which was basically nothing. He began the nebulizer and then the vest. After starting with the vest I can get some mucus up but it also gets stuck in my throat. I don't have acid reflux. My MAC was also ruled out at this time. I could not convince him (yet) to give me 7% saline but have found it through Amazon. I hope to convince him to give me a script as I am sure it would be cheaper with one. I do want to use it to keep my lungs as healthy as possible. This site has provided a wealth of information.
Replies to "Hi migizii, your post sounds exactly like me. When I first started going to the pulmonologist..."
In reply to gej53.....May I ask how much you pay for the solution on Amazon as Pt. D doesn’t cover this and so far, I haven’t had any luck with getting it covered. Your situation sounds so much like mine....do you have MAC? I initially had some very strange bacteria that my pulmonologist did not treat and no other “bugs” have shown up, although he rarely has me do a sputum test as my bronchiectasis is not progressing very much on yearly CAT scans.....my energy levels fluctuate and my weight isn’t that easy to hold on to (many people feel jealous, but not when one wants some weight). Otherwise, I’ve been pretty good king health wise. Twice daily nebulizing must really be key! This is a valuable site. Stay safe and may you have a nice day😊
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Do I understand correctly that you’re able to get 7% saline from Amazon?