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Celebrating an antibiotic-free year
MAC & Bronchiectasis | Last Active: Nov 24, 2020 | Replies (105)Comment receiving replies
Heather,
I was diagnosed 3 years ago with cavitary disease and MAI Avium. I had surgery a year ago to remove parts of my right lungs with cavities and infections but have never really recovered. The surgeon said that not enough of the antibiotics get to the lungs to treat that and bronchiectasis. I still have MAC in 1 out of 3 sputum cultures.
I have VERY high CRP (inflammation) #s so some infection is raging.
I have terrible allergies to antibiotics and am really afraid to start the protocol. I'm so afraid when I read the side effects and the 2 years needed to possibly put MAC in remission.
Can you share your experience and knowledge with me?
Thanks,
Ellen
Replies to "Heather, I was diagnosed 3 years ago with cavitary disease and MAI Avium. I had surgery..."
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Hello Ellen. I see that you just recently joined our group. Welcome! I am sorry to read that the lung surgery did not fix the problems with your lungs. Did you have it done at NJH by any chance? Here is a list of other group members that also have dealt with MAI. You can go to their profiles and read all of their posts, or you can reach out to them and ask questions. Here they are:@brigby, @jammer, @irene5, @poodledoc, @Cathln. Maybe after exchanging thoughts on treatment plans with these other members; you can come to a decision on how to proceed for yourself. Read and learn all that you can about your disease. Knowledge is power!