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Celebrating an antibiotic-free year

MAC & Bronchiectasis | Last Active: Nov 24, 2020 | Replies (105)
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@heathert

@windwalker yes I know how you feel with fatigue, I was also only doing the morning saline and started coughing alot, I have been rediagnosed with MAI in my lower left lobe (wondering if thats the last lobe saline reaches). I am starting the meds again(what a pain) the MAI has been tested for the big 3 and is susceptible to them, thank goodness, I asked about other drugs but she said they have worse side effects, I mentioned they may be faster but she wasnt keen. Sorry its not good news, hope you are feeling better soon.
Take care
Heather

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ellenn | @ellenn | Nov 15, 2020

Heather,
I was diagnosed 3 years ago with cavitary disease and MAI Avium. I had surgery a year ago to remove parts of my right lungs with cavities and infections but have never really recovered. The surgeon said that not enough of the antibiotics get to the lungs to treat that and bronchiectasis. I still have MAC in 1 out of 3 sputum cultures.
I have VERY high CRP (inflammation) #s so some infection is raging.
I have terrible allergies to antibiotics and am really afraid to start the protocol. I'm so afraid when I read the side effects and the 2 years needed to possibly put MAC in remission.
Can you share your experience and knowledge with me?
Thanks,
Ellen

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Terri Martin, Volunteer Mentor | @windwalker | Nov 15, 2020

Awe crap Heather!!! I am sorry sweetie. You are a soldier, and you will kick it's but again, I just know it!Sending you hugs, love, and healing vibes.

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