← Return to Undiagnosed Neuromuscular Disorder: Searching for Answers

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@lioness

@chamiltonatc Im so sorry for all your problems at such a young age . I do welcome you to connect , we arent Dr.s but can try to help . May I first ask you when did all this start and how did it start? Have you seen a cardiologist for any information? Have you considered going to Mayo in Fla. Jacksonville . That hospital is world renowned in research and can diagnose where others miss. My prayers to you

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Replies to "@chamiltonatc Im so sorry for all your problems at such a young age . I do..."

@lioness thank you! This started 4 years ago and with just tingling on the inside of my left foot. I have not seen a cardiologist, my neurologist has been checking my BP, seeing if I’m orthostatic, each time I see him. And so far, that seems stable. And I’ve been doing some research on getting a second opinion, I’m just not sure where to go.