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hypotemusea (@hypotemusea)

Small Fiber Neuropathy and genetic testing?

Neuropathy | Last Active: Oct 16, 2020 | Replies (28)

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@sunnyflower

@hypotemusea @jesfactsmon Hello All, in regard to genetic testing or other tests to determine neuropathies, this I know from working over 20 years in the medical field as well as being a patient of many, many years with many, many specialists, that if a provider is certain of a diagnosis, they will not do testing because the test results will not change the outcome or treatment. Can any of you let me know if this would be different for neuropathy? Meaning, would be treatment our outcome be different where a patients neuropathy to be genetic or not? Are there any benefits to knowing this other than any family members including the patient, wanting to know? Thank you so much and many blessings to all of you, Sunnyflower 😊

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Replies to "@hypotemusea @jesfactsmon Hello All, in regard to genetic testing or other tests to determine neuropathies, this..."

@sunnyflower – In my non-medical opinion, it probably does not make a difference in the outcome or treatment to know if your neuropathy is genetic or not. That said, it would be nice to know for younger relatives to save them from lots of stress and perhaps a chance to take some preventive measures if available.