← Return to In recovery. Too many symptoms. Autoimmune disorder? HELP!

Discussion
Comment receiving replies
@jenniferhunter

@sunnyflower Thank you. I don't really dwell on the problems, just the best choices I can make to fix the problems. I have learned a lot from my own experiences, my expert physical therapists, as an advocate for my elderly parents, and the biology degree I got years ago. I read a lot of medical literature to learn about my own physical issues, and being a creative person, I recognize and remember patterns which in this case are collections of symptoms. I learned a lot of human anatomy in biology and art school, so I think in 3 dimensions which helps me understand the physical problems.

I had only one cervical spine injection and will not do them anymore. I had a bad reaction with a paraesthesia that caused burning stabbing pains in my hand for a couple months because the injected fluid had nowhere to go, and cold sensitivity for a year and a half. The doctor was an anesthesiologist and he told me that spine injections should not be done above the C6 level because they were too dangerous. Ask many questions before you let someone do that and this is an off label use of steroids because they were not FDA approved for spine injections. You can look up a lot about that. The nerves that service your lungs emerge from the spine at about the C3 level which is why injections there are risky. The occipital muscles on the back of the skull can be very painful if alignment is askew in the neck, and that can be treated by a physical therapist. The joints of the skull can be out of alignment, a PT who does cranial work can help. The occipital muscles have some attachments that pull on the dura (covering of brain and spinal cord) which causes headaches. My PT explained that to me. I know it sounds funny to say this, but literally there have been times when my skull was not sitting straight on top of my spine, but slightly misaligned due to muscle spasms, so I didn't have my head on straight.

I guess we have a bit in common. My ankle fracture last May was caused by falling off a horse at a full gallop that had spooked because of a loose dog.... not my horse, but a borrowed horse because my old bomb proof horse was not sound enough to go on the trail riding trip. No more green horses for me! I have been in physical therapy for the last 2 months learning to walk again and trying to do it right and challenging the muscles to return. After 3 months of no weight bearing, my entire leg is smaller and weaker, but I am making steady but slow progress. My cervical spine issues were from a whiplash years earlier, and as a kid, I also fell on my face and broke my front teeth which caused many dental problems over the years. I'm still dealing with that too. Injuries cause many problems that can go on for years. I am doing well. We do have an amazing power to heal if we do the right things. Physical therapy and myofascial release has done a lot for me. Your severe spinal stenosis doesn't sound so good. I hope you get that resolved and recover. I'll be rooting for you! I hope you share your experiences here.

These articles can explain a lot. There are ones about axis/atlas instability C1 & C2, TMJ, Thoracic outlet syndrome, spine, etc. The are technical and long and written for physical therapists. https://mskneurology.com/category/articles/

Jump to this post


Replies to "@sunnyflower Thank you. I don't really dwell on the problems, just the best choices I can..."

@migizii in response to Jennifer Hunter: although I don’t write often, I deeply appreciate your insights and this recent post with the website to explore I believe gave me an “aha” moment after reading one of the articles! I am going to share it with my PT. It is about clenching your body when trying to do exercise, etc.....thank you❤️