Good morning,@artscaping, Chris, my decision to not start Prolia has come from reading extensively at medical sites and from what others in this and another patient forum have shared about their experiences after being on it as well as other osteo prescribed meds.
Only with the news that I'd need to take a year vacation from Reclast have I realized how incredibly lucky I've been during my many years of taking various osteoporosis drugs to have reached this stage without adverse and sometimes lingering detrimental side effects. While my first choice would be to discontinue any prescribed drug and rely solely on diet, supplements and exercise, I quake at the thought of stopping prescribed treatment cold turkey.
I am concerned by the reports that stopping Prolia, which doesn't have a timeline like Forteo and Reclast, can actually erase benefits gained.
I have a year in which to decide about resuming Reclast which has resulted in improved lab scores for me with no outward negative effects and apparently continues to provide residual aid. More research and questions for my doc regarding additional supplements like strontium, magnesium, boron and K2 will continue until my next annual visit. I may consult a specialist and also make another dietitian visit to see if there are other foods I can add to my diabetes/kidney diet that will further strengthen my bones without causing problems for these other conditions.
Honestly, I'm still in the researching, thinking stage and like you, still uncertain of the next best approach to undertake. I appreciate your asking and wish I could share a long list of sites that brought me to my instinctual reluctance but mine is based more on a "gut feeling" that this particular drug is not one I want to take a chance on.
Hope you'll share what you decide about treatment going forward. Best to you and all who are working to keep our bodies working as well as possible.
Wow....@fiesty76, I am in the same canoe....I think. Need to get somewhere....but it seems all of the choices have holes in the structure. I did some more reading today. Here were the negatives for me.......bone, joint, and tissue pain. I deal with that every day trying to control neuropathy. You can take it for 10 years.........but the side effects don't always go away. DEXA scan scores didn't improve but then I remember that Prolia doesn't form new bone...it just keeps what you have all in one piece (hopefully). And when the most significant rise in fractures seemed to happen pretty quickly.....I am somewhat alarmed. The research is set up correctly I think and the incidences are recorded and calculated accurately as far as I can see.
Where is our shining star? I check in November 13 to discuss options. Pour the info my way if you see anything significant. Watching calcium also isn't one of my favorite things to do. How many grilled cheese sandwiches can I eat to take the place of the supplements which drive me crazy.
Thanks for responding....I'll check back in after the big decision meeting.
May you be free of suffering and the causes o suffering.
Chris