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Reclast Appointment Cancelled Morning of Appointment!
Osteoporosis & Bone Health | Last Active: Nov 29, 2022 | Replies (85)Comment receiving replies
Hello, Catcando, I have both but can't bring myself to take a bisphosphonates bc of the potential side-effects. My osteoporosis is severe from the steroids I've been on since the early 90s. I am now steroid dependent. My adrenal galnds bit the dust bc of them. I 've had 3 pelvic and one spontaneous rib fracture/s. Those are only a few of my diseases and conditions but since I already hurt so bad and the literature about bisphosphonates says bone/muscle /joint pain and flu symptoms can be "severe" and "debilitating", I can't make myself take them! And although rare (I already have 3 rare diseases so rare doesn't mean much to me), the medication can cause femur fractures and femur tumor! And quite a few other horrible things. And, if you have any of these Sxs, they can last the duration of the medication! Many people do fine on them, but there isn't one medication that can do both things that need to be done to really improve osteoporosis which is to rebuild bone and remove old bone out of the way. Hopefully someday!
Take good care and many blessings, Sunnyflower
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Hi Sunnyfloweer. Thanks for your post. There are several new drugs that do help rebuild bone and I have tried 2 of them but don't yet know what the results are. I started with Evenity which is probably the mildest of the anabolic treatments. They claim that "EVENITY® works to both build new bone and to a lesser extent slow down bone loss at the same time" https://www.evenity.com/why-evenity/how-evenity-works
Evenity is a once a month injection done in the doctor's office.
I felt kinda bad while I took it but I stuck with it for 5 months. Then I wanted to try something different. The doctor put me on Tymlos which is similar but is self-injected once a day. I felt worse and after 2 weeks I stopped it.
I am now seeing a different doctor because the first doctor said I could not go back on the Evenity. So I will start it again next week with my new doctor.
Because I have neuropathy I can't be sure what causes my symptoms - is it the neuropathy or is it the medicine? Anyway I am running out of options. My neuropathy is getting worse fast and I have to become a lot more proactive in getting exercise and sleep. And I am gong to have to tolerate whatever Evenity dishes out or give up. But I have a new doctor and we'll see what she says. Everyone is different so just because I have side effects doesn't mean that you will have them. From what I hear many people have no or mild side effects from these drugs. I have been on Fosamax (Alendronate) for 3 months and did not have any noticeable side effects but as you know it doesn't rebuild any bone so since my osteoporosis is severe I am going to give Evenity a shot again (no pun intended). I hope you find something that works for you.