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@catharbert

I have polyneuropathy and osteoporosis and I am wondering if anyone who has both these illnesses has taken Prolia and if so what their experiences have been. I am considering it but afraid because I am not in good health and I fear I may have really bad side effects from it. I have tried Evenity and Tymlos both with very uncomfortable side effects.

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Replies to "I have polyneuropathy and osteoporosis and I am wondering if anyone who has both these illnesses..."

Hello, Catcando, I have both but can't bring myself to take a bisphosphonates bc of the potential side-effects. My osteoporosis is severe from the steroids I've been on since the early 90s. I am now steroid dependent. My adrenal galnds bit the dust bc of them. I 've had 3 pelvic and one spontaneous rib fracture/s. Those are only a few of my diseases and conditions but since I already hurt so bad and the literature about bisphosphonates says bone/muscle /joint pain and flu symptoms can be "severe" and "debilitating", I can't make myself take them! And although rare (I already have 3 rare diseases so rare doesn't mean much to me), the medication can cause femur fractures and femur tumor! And quite a few other horrible things. And, if you have any of these Sxs, they can last the duration of the medication! Many people do fine on them, but there isn't one medication that can do both things that need to be done to really improve osteoporosis which is to rebuild bone and remove old bone out of the way. Hopefully someday!
Take good care and many blessings, Sunnyflower