@fiesty76
I have taken fosamax, another one I cannot remember the name of orally and my stomach could not handle them so went to Reclast. I have forgotten how many treatments I had.
I have officially osteopenia, but because I have had a compression fracture in my back.. simply on my knees in the kitchen reaching for one of those rarely used pieces of cookware at the back of the cabinet and did the damage.. I am treated as if I have osteoporosis.
I have a bone scan every two years... once I went 4 years because of my upper abdomen problems taking precedent. I was on the break from Reclast at the time.. not sure how long the break was suppose to be. Other than having trouble every time getting the IV in for the infusion I had no problems with it.
I did Prolia I think in either late 2017 or early 2018. Within a couple of hours my stomach hurt.. like a stomach ulcer. I actually called the Mayo Clinic to let my team know and asked what I should do. I had started taking Mylanta on my own and they told me to continue that and to call back if I got worse or no better. I was better after a couple of weeks of that. I am like.. this is an injection how can it hurt my stomach. When I took the Prolia I was told no one had ever had a reaction to it. I read of many who have now, but at the time I had Prolia I had not. There are many trials on such drugs, but the real trial is when it is released into the public. Everyone is different even though our systems work basically the same way.. we react differently.
Last fall I was suppose to meet with an NP and discuss another plan, but that morning my mama .. who lived with us.. had a stroke; I canceled the appointment and I never rescheduled. I was given a printout of a summary chart of my treatments and scan results a few weeks before by an NP at my yearly pelvic exam. There was really no improvement with any of the treatments and no real changes in the scan numbers. I think in my case.. for now at least.. is to just try and eat nutritiously, take my mult-vitamin, vitamin d, and b-12 injection and exercise.
I take generic Pilosec for my stomach and esophagus problems. PPIs are not very good for the bones, but it is a damned if I do and damned if I don't situation. sigh.
ZeeGee
@fourof5zs, Thanks for sharing your experiences, ZeeGee. I took both Fosomax and Forteo before starting Reclast and only now am I learning how very fortunate I was not to suffer side effects that others write about. I am going to be very slow in deciding what changes I will make to try to develop the best bone health I can going forward. I'm still overwhelmed by the Reclast cancellation and need some time to think through options and regroup. I appreciate the sharing this forum offers and am so glad to have a place where other experienced patients can share.