← Return to Reclast Appointment Cancelled Morning of Appointment!

Discussion
Comment receiving replies
@sunnyflower

Hello lioness and @fiesty76. I have posted this info recently so please forgive the repeat. I've had severe osteoporosis for about 5 years. 3 broken pelvic bones, one rib and other smaller bone freactures. My Endocrinologists have been trying to talk me into taking meds, specifically bisphosphonates, for years. I have been doing a lot of research on them. I can't bring myself to take them b/c of the potential side-effects. Some serious: femur fractures, femur tumor, acute kidney failure and the list goes on and on. The not so serious side-effects can potentially be "severe/debilitation" joint/muscle/bone pain and/or flu-like symptoms, stomach pain, and the list goes on and on! I know they say they are rare, but I've already had some organs and glands harmed from my current meds. And, I've had some awful side-effects. I also already have 3 rare diseases so when they say rare, that doesn't comfort me. When I was at my dentist office last week, I told her my situation and that I was considering taking bisphosphonated. She told me some info about bisphosphonates that scared me. She said that Alendronate which only lasts 3 months, stays in your body for "decades"! This was the one my Endo wanted me to try to see if I could tolerate bisphosphonates b/c it is the shortest acting bisphosphonate. She said that once someone has 3 injections of Reclast, which is the one my Endo wants me to take, that should they need a tooth pulled, no one on the planet will do it. She explained that osteonecrosis of the jaw (ONJ), one of the potential side-effects, is very serious and can occur with any invasive dental work like a tooth being pulled. She said that there would be no blood flow to heal the bone after the tooth was pulled. They must treat the problem a different way but it all sounded serious. This dentis is at a specialty dental group. I was sent there by my long-time dentist whom I loved b/c, and I quote, "I do not have the extra training required to care for a patient as complicated as you". I cried for 2 days. It's my disconnect about being ill. Anyway, she set me up with this dental group who see very sick patients who even fly in from out of state. When my husband and I looked into them, we didn't even recognize the degrees they had! Quite impressive! I thought all dentists had medical degrees but they don't! "Dental degrees are DDS and DMD. A DMD is not an MD". So, either way it's a no-win for me. I'm just stunned and confused and feel trapped. I mean w/ this osteoporosis you can break a bone coughing or turning over in bed! We are not supposed to bend or twist. It's impossible not to! Ug. I just pray a lot believe me! I do not mean to alarm or confuse or discourage anyone. I just felt that when this info came my way that I had a moral obligation to share it. I hate being the bearer of bad news! So far, as my dentist explained, there is no medication for osteoporosis that does both functions of the bone: "Osteoclasts are responsible for aged bone resorption and osteoblasts are responsible for new bone formation". Hopefully there will be some day. Again, I apologize for being the bearer of this troubling information. I pray for you and wish all the best for absolutely everyone who is in this situation. I think there are success stories and I pray that for all of you! I care deeply for all of you. Please accept my heartelt warmest wishes for your well-being, Sunnyflower

Jump to this post


Replies to "Hello lioness and @fiesty76. I have posted this info recently so please forgive the repeat. I've..."

@sunnyflower No apology necessary As you read I just had one Reclast infusion and at first I was fine but after a couple of months My teeth hurt and gum I lower I had them o.k. but do know what to do so I will get everything healed .I'm glad you wrote about teeth and your Dentist My bone scan is in July next year even if I see an improvement I will research this strontium I'm.already on the others boron included I take 3mg but may boost it to 6 mg . I'm glad you posted You have so much to contend with yourself it's nice of you to do whatever you can for others God bless you

@lioness, & @sunnyflower, Sunny, I so regret your difficult situation and your candid, informative sharing of your experience. Like everything else, all of us are so different and what will work for one can spell serious trouble for another.

I was indeed fortunate 15-20? yrs ago when a fall resulted in 7 fractures but none required surgery. My orthopedist did not mention bone density tests at the time.

It was a few yrs later when I had a double tooth root canal that the endedontist? recommended a bone density scan. I did learn later of the concern that osteonecrosis of the jaw (ONJ) could occur with treatment of bone density meds. However, I opted to continue with bone density meds and have been lucky to have since had tooth surgeries, another root canal and most recently the removal of another tooth without any outward physical problems.

With multiple, serious health issues, it becomes the diliemma of where we can find ourselves between a rock and a hard place. Am I more concerned about my lung and effects of meds on other organs or on my heart meds which can also detrimentally affect other organs? Friendly foods on one diet for a malady aren't recommended for another.

The mentions of strontium and boron are both new to me so I need to learn more about both.

Whatever is ingested, whether otc or prescribed meds or fast foods vs organic carefully prepared foods will affect multiple body organs. The challenge for us the patients is to try to determine which will help or hurt most. Sometimes, I just want to throw up my hands in exasperation, toss out everything and load up on fast food chili cheese dogs and triple rich milk shakes. Sigh

Doctors don't usually have or take the time to thoroughly review our prescribed medical "cocktails" which leaves it to us struggling mortals to choose.

Thanks again, for your sharing and wishing us all the best, Sunny, going forward. Staying well and safe is a full time job, yes? Smiles

@sunnyflower What my hygienist told me, and I am quite sure she had been told this by the dentist, was that the problems last as long as the drug. For instance, if you are taking Reclast you can't have surgery until the year is over. If you are taking a shorter-lived drug then you don't have to wait as long.
I can't swear to all of that, but that is what I was told and it is a pretty good practice.
JK