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← Return to MALS, FMD and possibly POTS
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Hello,
I'm lost on how to move forward. I have had symptoms for approx 2 yrs. My first full surgery was in 2013. I have moved out out of state since then. I have been very ill. I can't even tolerate fluids much anymore. Pain, weight loss, chronic hypoglycemic, pain and severe diarrhea. They have done CAT scans with contrast that showed celiac artery narrowing again. I do not how much. I also have FMD in renal and carotid artiries and having sudden BP issues and passed out at work. They are looking at me like I'm crazy. All have said it is your anxiety. I get what they mean somewhat. I think with any chronic diseases we can sometimes go through anxiety and depression, only speaking for myself. I'm ready to throw in the towel. I have to work to support my self and have already used all my FMLA for the first time.l ever this year. I have seen nutritionist, and other doctors with no avail. I feel malnourished. Any feedback would be great. Thanks and wish all of you the very best of health as you move forward in this journey.
Replies to "Hello, I'm lost on how to move forward. I have had symptoms for approx 2 yrs...."
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@jayhawk57 - Hello again! It sounds like you are doing worse now. What happens when you drink water?
With the FMD and MALS diagnosis I hope you are seeing cardiovascular surgeons. Tests should confirm reason of your suffering.
As mentioned before, it may be a good idea to get a second opinion from a large university hospital , Mayo Clinic or Cleveland Clinic. To me, this looks like the only path to get cure.
I also agree they it may be a good idea to speak with a therapist about your anxiety caused by this illness. I did- my chronic illnesses and pain caused a lot of anxiety that was good to share with a professional.