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@contentandwell

@mpflood7 Hi, and I too welcome you to Connect. You joined on my birthday! Sorry, I am a bit late in responding to you, I am not on Connect as much these days as I once was.

I live in southern NH and all of my care was here until I had an undiagnosed problem that went undiagnosed for almost a year and a half. It was finally diagnosed as non-alcoholic cirrhosis. My PCP here recommended me to one hospital but neither my husband nor I liked the doctor with whom we dealt so I researched and chose to go to Mass General in Boston. Now I have most of my care, other than my PCP there, except for my endocrinologist because I am certain I could not do better than him.

I chose MGH after looking at rating sites and learning about which hospitals are good for varying specialties, specifically transplants for me of course. You have had some great responses, and there are some excellent resources out there. I know US News was mentioned. I think their ratings are considered the gold standard for hospital ratings. Most years Mayo is #1 followed by MGH, and Cleveland Clinic in the #2 and #3 spots, with Johns Hopkins up there also, so none of those are too shabby. MGH has been tops in more specialities than any other hospital in the country also so that is also something you might want to check - how a hospital is rated in that discipline. Teaching hospitals tend to be the best I think if you live in an area where one is available to you.

Another resource that many people are not aware of is Medicare hospital ratings. You may not be old enough for Medicare but hospital quality is the same whether you are under or over 65. Looking at my own state, NH, and also Massachusetts, I think they are fairly accurate. I think that Mayo's MICT approach sounds great and tremendously helpful. When I had cirrhosis my symptoms were so varied I would have had no idea what type of doctor to go to. It sounds as if MICT would have been the best choice. I have a problem now also that has me befuddled and I am not sure what type of doctor to see. I think I will ask my transplant team if they have suggestions.

The other possible place to look is for ratings for specific types of conditions. There is a site that rates transplant hospitals, perhaps there are sites that rate other hospital specialities too.

I hope you can find a hospital that you really like and feel in which you feel confident. I think that's key, to feel confident of the doctors affiliated with a hospital. I very recently changed PCPs. I really like my prior PCP from a personal standpoint but I felt like he let me down a couple of times, that I had fallen through the cracks, so I changed. So far I am more confident in my new doctor. I will never have a rapport with her that I had with my prior PCP but my healthcare has to take priority.
JK

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Replies to "@mpflood7 Hi, and I too welcome you to Connect. You joined on my birthday! Sorry, I..."

Thank you for the thorough reply JK. I hope you continue to get the best care and stay healthy.

2 Harvard / MGH professors each independentely recommended the Mayo Clinic, due to their Collaborative “MICT” approach. However, I still don’t really understand why MICT is unique to Mayo given it would seem to make sense that every hospital would follow such an approach. In any event, the earliest I could get in to see my local (Florida) doctor so as to call and make the referral is on November 11.

** What is really giving me major stress is the waiting - as I need to get healthy to work and make money to pay my bills. If you or anyone knows how to speed the process up, please let me know. **

In the interim, for example, I understand Clevelend Clinic has a MICT program modelled after Mayo. Their program, called “National Consultation Service” (NCS) can be googled and looks ideal. However, just this past Friday, they told me it would take 5-7 months to get the appointments (with various specialists) scheduled. 5-7 months !? That sounds crazy to me, as I don’t know who can wait that long for serious illness - and in my case, financially. Meanwhile, I haven’t learned of any MICT program at Johns Hopkins - a hospital that I find to be administratively a mess, though I understand that they have some of the best doctors. So right now, I am hoping on Mayo #1, Cleveland Clinic #2 and Johns Hopkins #3. Interestingly, I don’t know yet whether to really believe the rankings as to the quality of care but in my experience with the administrative staff, of those 3, Mayo Clinic is definitely #1.

Again though any tips on how to speed up the appointment process is appreciated. I just hope I can stay healthy and financially afloat while waiting.