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@tdrell

Hi mpflood7.....first let me say that I am very impressed with your objective efforts to determine how to obtain quality /comprehensive care. I suspect with your inquisitive nature.....by asking questions ...not assuming etc....you possibly would receive a safe level of care anywhere. The staff would realize you expect safe and thorough care....your “eyes are wide open.”
As a RN I have had an advantage over the years in trying to match medical situations that I /family/friends have had with the best provider. So I would say if you know anyone in medical field, pump their brains for input....but be sure you have confidence in their judgement. Also talk to people who you trust to see if they have recommendations. I once asked a radiologist tech who he would use with hand issue....a nurse on orthopedic floor and a PT person who they would go to for hip replacement.
Make full use of the internet....be wary of things saying AD....and too high up in Google ...
Call the place....what does your intuition tell you of how they sound.
You mentioned you will have one shot at going to a place....that’s sorta hard I think.....to determine which route to take for my husband’s prostrate cancer, we checked out 4 places,4 different approaches, and chose the one that we were most comfortable with...and still are 16 years later.
With my diagnosis 4 years ago with NTM infection in lungs, I spent lots of time on google learning about the bacterium, read link to this Support Group from Mayo Clinic. Coincidently it mentioned that there was going to be a day Seminar on NTM infections for patients and families in Denver in a month at National Jewish Health. Fortunately my daughter had just moved there so I would not have expenses and stress of knowing no one in an unfamiliar city.
So I began the process of being a patient there and attended the workshop where I could hear/see their specialists. I began as a patient there 4 months later, was scheduled for a 14 day evaluation....have returned for annual check ups and another annual workshop.
I did see a local infectious disease Dr prior to my visit to NJH who based on one culture would have started me on the rigorous 3 antibiotic anti TB regime ...NJH told me that their criteria are 2 positive cultures and Bronchiectasis on Chest CAT scan...none of which I had.
They told me this...that I did not need RX on 3rd day there....rather than make me wait the 14 days in suspense....very caring.
Their doctors spend time with their clients....our poor local drs are scheduled with a patient every 15 minutes or less.

You mentioned you would like being hospitalized while undergoing a work up....even before days of COVID....no...still too hazardous. ....and disruptive to your habits. At NJH as a new patient....at that time... you would be assigned a hospital room to use between appts for your 2 weeks there. Could even order up delicious meals ....no cost.
I loved reading their history....was astounded that they did not charge patients til 1968 .
I could go on and on...it reassures me that there is a place like this I could go to...hope you find one you will feel same way about.tdrell😀

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Replies to "Hi mpflood7.....first let me say that I am very impressed with your objective efforts to determine..."

Thank you. My mother and grandmother were nurses, so I am a fan.

Regarding being assigned a hospital room, can you clarify? Do you mean you had regular access to a dedicated hospital room even as an outpatient?