I am so pleased to be able to be a part of this discussion.
I first off want to say that during my initial evaluation at Mayo Clinic for HCOM, I was so impressed at the care I received at there. When the opportunity came up for me to see a top doctor at Cleveland Clinic in Cleveland, we chose to move my care there since we have family and friends there for support and it was was so much closer, not because it was any better than Mayo. My septal myectomy surgery was performed there in Feb 2020 after my visit there in November 2019. At that time, I was told I was ok, may be able to be a part of a medical trial, and come back in 6 months. That changed pretty quickly when I started to feel poorly in December and my obstruction became significant. CC responded right away resulting in my surgery in Feb 2020. I want to emphasize that I am so fortunate to have had the opportunity to be a part of both systems. Both are excellent care facilities and they both set a high standard for me. The collaborative approach in both places is so amazing. My local medical community in Southern Indiana does not come close to what they both have to offer. I feel spoiled by by experiences there and it has set the bar high for me. I fell in the Covid hole after my surgery and proper timely follow up was not available other than through the virtual visit with my CC doctor. After getting mediocre/poor care with my local cardiologist, we decided to move my care to another doctor closer to me in Indianapolis who is very specialist in this area and is a colleague of my CC doctor. What I have learned through this process is that when you have a serious heart condition, see a cardiac specialist who sees many cases instead of just a few and take it seriously. Our lives are too important.