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@kanon

Hi. Just found this group. I was diagnosed with a 4.8 cm TAA in Feb. Because my sister was diagnosed with hypermobile Elhers Danlos Syndrome, a connective tissue disorder that can affect strength of arteries, I was sent for genetic testing. Step two of that testing begins on Thursday. My surgeon feels I may need the surgery sooner rather than later if I do have EDS as it puts me at higher risk for dissection. We’ll see if it has grown at all on next CT scheduled for May. I, too, want to just get this over with. Not sure what I’m really hoping for.

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Replies to "Hi. Just found this group. I was diagnosed with a 4.8 cm TAA in Feb. Because..."

I am scheduled for genetic testing in Dec. What does that involve. My dad had abdominal AAA and brother thoracic.