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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Oct 21 5:20pm | Replies (174)

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@otis123

I have seen the trials from a lot of places. The National Cancer Institute is in touch with me on a regular basis. As we found out when we went to Duke, all current treatment pretty much has to stop for the insurance to pay a new hospital who wants to do their own testing even though recent test results are shared. The one trial we hoped to get in at Duke was very promising, but he didn't qualify because of the makeup of his tumor. None of the other trials are enticing enough to stop current treatment. The doctors at Upstate in Syracuse are pretty on top of latest treatments and trials and have been very open to discussion options. It's not like this cancer allows a lot of time to travel the country. I think we are doing okay with our plan. At least Lomustine lists brain tumors as its first target to treat. Because it is taken orally, it should hit the brain quicker. We will just hope and pray it works and, if not, we will look for something else. Thanks for providing the website.

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Replies to "I have seen the trials from a lot of places. The National Cancer Institute is in..."

The first Lomustine treatment was 4/2/2021 and, so far, no side effects at all. An MRI is planned for 5/11/2021 to see if any changes before the second treatment is given. The plan is to take 230 mg every six weeks. There was a recent article talking about a new drug that could be game changing for brain cancer treatment.
Here is the link: https://www.theguardian.com/science/2021/apr/11/early-findings-show-new-drug-could-be-game-changing-for-brain-cancer-treatment It says patients with a defect in the Pten gene could benefit the most.