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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Jan 17 10:05pm | Replies (168)

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@amandajro

@otis123 forgive me if this has already been shared with you, however, in the event that it hasn't I wanted to pass along the website where you can search for Mayo Clinic Clinical Trials.

Mayo Clinic Clinical Trials:
https://www.mayo.edu/research/clinical-trials

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Replies to "@otis123 forgive me if this has already been shared with you, however, in the event that..."

I have seen the trials from a lot of places. The National Cancer Institute is in touch with me on a regular basis. As we found out when we went to Duke, all current treatment pretty much has to stop for the insurance to pay a new hospital who wants to do their own testing even though recent test results are shared. The one trial we hoped to get in at Duke was very promising, but he didn't qualify because of the makeup of his tumor. None of the other trials are enticing enough to stop current treatment. The doctors at Upstate in Syracuse are pretty on top of latest treatments and trials and have been very open to discussion options. It's not like this cancer allows a lot of time to travel the country. I think we are doing okay with our plan. At least Lomustine lists brain tumors as its first target to treat. Because it is taken orally, it should hit the brain quicker. We will just hope and pray it works and, if not, we will look for something else. Thanks for providing the website.