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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Jan 17 10:05pm | Replies (168)

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@collinv

Hi Otis and everyone, I came across this thread when researching Essiac and figured I might respond with some things that may help. My dad is 5 months into his GBM diagnosis and is doing well so far, with only fatigue as an ongoing symptom. I feel much anxiety even with one follow up MRI showing minor improvement, I can only image what some people here must be feeling.

I wouldn't want to dissuade anyone from a clinical trial or any other treatment, but there's a legitimate argument to be made that adding the right supplements onto other treatments may help. While some would argue that supplements could potentially interfere with other therapies (which is true), how does that compare with how likely they are to help, particularly with a bit of research into safety and interactions? Effective treatments don't necessarily have to be expensive, and each one is a chance at something better.

There's one study in the PMC of five patients with GBM where one died at 48 months and the rest are still living, taking herbal medicines. You can google "Treatment of glioblastoma with herbal medicines" to find it (not allowed to post links, sorry).

Also have you heard of Joe Tippens' story with Fenbendazole? I recently came across it and find it very interesting. Amusingly, Fenbendazole is a canine dewormer that is gaining traction for repurposing with cancer. There's a human version of this drug, Mebendazole, which appears to also be proving itself as an interesting candidate for cancer therapy. Mebendazole is also included in the COC protocol, a regimen of 4 repurposed drugs for cancer treatment also with promise.

There's many cheap, widely available, non-toxic supplements worthy of consideration like curcumin, melatonin, fish oil, ginger, garlic, boswellia, etc. In isolation any individual agent is likely to fail to overcome the many growth pathways present in cancer, but combined there is reason to hope. It could be that Optune was helping but wasn't enough on its own to stop tumor progression. Also have you heard of the film Surviving Terminal Cancer? It's specific to GBM and would highly recommend. I wish you all the best.

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Replies to "Hi Otis and everyone, I came across this thread when researching Essiac and figured I might..."

Thank you for your message and suggestions! I really appreciate the references you suggest checking out. I definitely will research all of them. Otie is still drinking Essiac Tea, and I am diffusing Frankincense for 2 to 3 hours a day, which has the ingredient boswellia. You may be right about Optune, but the the cost of it is very high, and insurance companies argue paying when you are taking other drugs like Keytruda w/Avastin. It's a scary road for sure, especially when he is 15 months since diagnosis...feeling fine, but we know the cancer is growing and need to find something to, again, stop it in its tracks, even if for awhile. We are hopeful, and in the meantime, I will continue to research. You have been very helpful!!