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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Jan 17 10:05pm | Replies (168)

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@otis123

I was unsure and confused after trying to research information on keytruda and lomustine yesterday. Steve's (nickname Otie) oncologist called me at 7 p.m. yesterday and we talked on speaker and made a decision. He is definitely going to stop using the optune cap, since the tumor grew while he was wearing it. He will restart Avastin (Bevacizumab) an infusion every other week and begin Keytruda, a chemo pill. He will also have about 10 more radiation treatments. I was concerned the keytruda would not work because of his two prior surgeries, but the doctor said that there is new growth and he is not having a 3rd surgery so it should work. I had read that keytruda awakens and attacks dormant cells.....cells that would be lost if a new surgery is performed. Hey... we have to trust the decision and continue to pray this stops the growth and decreases the tumor for awhile. May all of us have some good luck in 2021 !!!

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Replies to "I was unsure and confused after trying to research information on keytruda and lomustine yesterday. Steve's..."

Hi Otis and everyone, I came across this thread when researching Essiac and figured I might respond with some things that may help. My dad is 5 months into his GBM diagnosis and is doing well so far, with only fatigue as an ongoing symptom. I feel much anxiety even with one follow up MRI showing minor improvement, I can only image what some people here must be feeling.

I wouldn't want to dissuade anyone from a clinical trial or any other treatment, but there's a legitimate argument to be made that adding the right supplements onto other treatments may help. While some would argue that supplements could potentially interfere with other therapies (which is true), how does that compare with how likely they are to help, particularly with a bit of research into safety and interactions? Effective treatments don't necessarily have to be expensive, and each one is a chance at something better.

There's one study in the PMC of five patients with GBM where one died at 48 months and the rest are still living, taking herbal medicines. You can google "Treatment of glioblastoma with herbal medicines" to find it (not allowed to post links, sorry).

Also have you heard of Joe Tippens' story with Fenbendazole? I recently came across it and find it very interesting. Amusingly, Fenbendazole is a canine dewormer that is gaining traction for repurposing with cancer. There's a human version of this drug, Mebendazole, which appears to also be proving itself as an interesting candidate for cancer therapy. Mebendazole is also included in the COC protocol, a regimen of 4 repurposed drugs for cancer treatment also with promise.

There's many cheap, widely available, non-toxic supplements worthy of consideration like curcumin, melatonin, fish oil, ginger, garlic, boswellia, etc. In isolation any individual agent is likely to fail to overcome the many growth pathways present in cancer, but combined there is reason to hope. It could be that Optune was helping but wasn't enough on its own to stop tumor progression. Also have you heard of the film Surviving Terminal Cancer? It's specific to GBM and would highly recommend. I wish you all the best.