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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Oct 21 5:20pm | Replies (174)

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@otis123

I'm sure you read the details of my husband's journey with Glioblastoma, starting with his first surgery 10/28/2019. His second surgery was 2/13/2020 after six months of temodar and radiation treatments, which everyone says is standard treatment. He wore the optune cap and had every other week infusions of Avastin (Bevacizumab) from mid-March through December 2020. His June and Sept. MRI's showed a decrease in his tumor, but the Dec MRI showed it has started growing again. That is what took us to Duke. The folks at Upstate in Syracuse have been wonderful so far, and I am asking our Oncologist to help with determining what is best for the next step---Lomustine or Keytruda. I am trying to read as much as I can to educate myself on the clinical trial results of each to help figure out which to do. It's hard. I wish you all the luck with your current treatment. I will let you know what we decide. Let's stay in touch!!

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Replies to "I'm sure you read the details of my husband's journey with Glioblastoma, starting with his first..."

I was unsure and confused after trying to research information on keytruda and lomustine yesterday. Steve's (nickname Otie) oncologist called me at 7 p.m. yesterday and we talked on speaker and made a decision. He is definitely going to stop using the optune cap, since the tumor grew while he was wearing it. He will restart Avastin (Bevacizumab) an infusion every other week and begin Keytruda, a chemo pill. He will also have about 10 more radiation treatments. I was concerned the keytruda would not work because of his two prior surgeries, but the doctor said that there is new growth and he is not having a 3rd surgery so it should work. I had read that keytruda awakens and attacks dormant cells.....cells that would be lost if a new surgery is performed. Hey... we have to trust the decision and continue to pray this stops the growth and decreases the tumor for awhile. May all of us have some good luck in 2021 !!!