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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Oct 21 5:20pm | Replies (174)

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@amandajro

Hello @mgreen616 and welcome to Mayo Clinic Connect. I am so sorry to hear of your husband's recent change in diagnosis and understand you are looking to connect with other who may be able to share information to help you navigate this next part of his care journey, as well as to find ways to share information with your young children as you go forward.

You will notice that I have moved your post into an existing conversation started by @otis123 who is also going through a similar journey with her husband. I did this so you can connect with her, another caregiver @IndianaScott as well as other members such as @begleycon who may be able to help you.

I found the following blog that may be helpful as you decide how to share with your young children:
-How to talk to your kids about cancer:
https://blog.braintumor.org/guest-blog-how-to-talk-to-your-kids-about-cancer/
Can I ask where you are at currently for his care?

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Replies to "Hello @mgreen616 and welcome to Mayo Clinic Connect. I am so sorry to hear of your..."

Hello - thank you so much for the reply! We live in Kansas and he’s starting chemo/radiation tomorrow at Kansas University Medical Center. We would love the opportunity to get into a clinical trial and get other opinions but it seems everyone wants to wait until this first round of treatments are complete and see what the MRI shows.