← Return to My Husband's journey with Glioblastoma

Discussion

My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Jan 17 10:05pm | Replies (168)

Comment receiving replies
@otis123

The arrays do itch once in awhile but not so it's a problem. He does get some red irritation spots at times. I put a steroid cream on them when we take the arrays off. It has to stay on for at least 20 minutes and then gets wiped off. I will then try to avoid covering any irritated spots by cutting out holes in the adhesive to let air get to them. We have been successful so far with no problems. He sleeps okay and has it plugged into a power source all night. It's just a pain to have to unplug and carry it with him when he wakes in the middle of the night. However, he has been wearing the cap since March 17 and is quite used to it. I am attaching a couple pictures.

Jump to this post


Replies to "The arrays do itch once in awhile but not so it's a problem. He does get..."

Thank you for sharing the photos I just saw them that is so helpful. I was wondering if there are any other forums that you know about and also have you come across lomustine its after 5 cycles of temodar my doctor suggests treating it with lomustine as there is recurrence. how effective it is ,side effects how you tolerate etc if someone has had it then please reply. Thank you.