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Ever Discouraged Not To Take Antibiotics?

MAC & Bronchiectasis | Last Active: Nov 9, 2021 | Replies (37)
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@crepass

Hi, I was recently diagnosed with MAC , was given a choice to try lung hygiene for a while vs. antibiotics. Was told by my doctor that 1 in 5 people can cure without antibiotics.(I would love the link to that study). I am questioning myself now because I got a cold from my grandchild (not COVID-she’s in my pod), and it has ended up exacerbating my Mac, despite 2x daily 3%ns nebs and aerobika. Sending sputum samples tomorrow. Tested negative for COVID

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Replies to "Hi, I was recently diagnosed with MAC , was given a choice to try lung hygiene..."
thumperguy | @thumperguy | Jan 3, 2021

Crepass, let's begin by taking it as a given that you're gonna be one of those "1 in 5." The thing is, 3% saline concentration is to 7% what O'Doul's is to Brewmeister Snake Venom beer. My apology for any discomfort caused by the metaphor, but three percent is a weak sister. Try it. I think you'll feel the7% announce itself in your throat right-off-the-bat. Don

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alleycatkate | @alleycatkate | Jan 3, 2021

@crepass Hi and welcome to our group. I'm attaching a link to an article that shows the efficacy of different saline solutions. If you drop down to chart 2 it shows that MAC is eradicated by a 6% or greater solution of saline. (I use 7% saline) This is a study done invitro but I like to think it corresponds to our lungs also. I was diagnosed with MAC and Bronchiectasis several years ago and have done beautifully with just nebulizing. Since your Dr is giving you the option of meds or lung hygiene it sounds that perhaps you have a mild case as I do. I would love to see that study that says 1 in 5 can be cured without antibiotics....any chance you could find out what the study was and share? I wish you good luck on your journey....and with knocking out your cold. Best of luck. Kate
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692/

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Sue, Volunteer Mentor | @sueinmn | Jan 4, 2021

I stopped the antibiotics in December 2019, while still positive for MAC but asymptomatic because the antibiotics were wreaking havoc with my system and my life.
I went on 7% saline nebs with Aerobika plus levalbuterol as needed. I have had no recurrence of MAC symptoms and fells 95% better - not sure if there is still MAC in my lungs, but it certainly has not progressed with the saline regimen. I don't have the cite for the paper your doc referred to, but will find it later today or tomorrow.
Sue

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