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Ever Discouraged Not To Take Antibiotics?

MAC & Bronchiectasis | Last Active: Nov 9, 2021 | Replies (37)
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@derbeltal

I know I do not post very often but I do follow the information you post and it really helps. I stopped my treatment in October due to side effects. I go Tuesday for the results of my CT scan. I cannot continue the treatments due to EYE AND EAR PROBLEMS. My pulmonary doctor says I am not clear of the MAC. I have a copy of the CT Scan and the only thing new thing is "endobronchial filling defects" which has not been on the other CT scans. The nodules have decreased and I have no new ones for the past year while on the meds. What will happen now that I cannot do the meds anymore? Thanks as always for your help.

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Replies to "I know I do not post very often but I do follow the information you post..."
Terri Martin, Volunteer Mentor | @windwalker | Nov 16, 2020

Hello Derbetal. It is good hearing from you. Yeah, the antibiotics used to treat mac can be a bear to handle. There are various ways to treat mac; the 'Big 3' is not the only route. You can click on my photo icon and read how I was successfully treated. It all would depend on your suseptibility test to show what other meds may work for you. There are also newer meds that are nebulized which sends the meds straight to your lungs., i.e. arikayce and clofazimine. These supposedly bypass being in your entire body and thus affecting other organs. Plus, they target the infected area, the lungs. You may want to ask your dr about alternate meds to treat you with. Do you have a copy of your suseptibility tests from the lab? If not, get it. This will help you to be in charge of your health. I have a file just for my sputem lab results and the suseptibility test going back to 2013. There are many reasons to do this, and I plan to start a new conversation about that. Good luck tomorrow with your dr appt. Reminder: while there, ask for a printed hard copy of all your sputem lab tests and the suseptibility test. Would you mind coming back on here and sharing what you have learned after your dr visit?

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