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I was diagnosed with PMR after the shingles shot. The fact that no one wants to discuss that AND that now the shingles vaccine is given in multiple doses spaced apart AND made by a different company says a lot. PMR and injection site redness/swelling were listed as the only two possible side effects - yet no doctor wants to discuss that perhaps PMR is a result of the old shingles vaccine.
I, too, was diagnosed at what doctors called an early age as I was 55 at the time. Because the doctors says I didn’t have GCA ( even though my vision changed dramatically and I had to have cataract surgery ) I decided to stop the prednisone, go to a chiropractor for neck and shoulder pain, do PT to strengthen my shoulders and SWEAT by exercising, walking etc. all those things have kept me off the steroids!!!
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Terre, I too feel strongly that my PMR was caused by the shingrix vaccine. I too am not pleased that the medical community is not aware or taking this seriously. I’m at year one, though only month 8 of being treated (took 4 months to get a proper diagnosis). I am on steroids, as I was not able to ambulate arms and legs and in extreme pain with visions issues and apparent GCA, jaw stiffness, vision problems, pain in temples. So had to ramp back up to 15 mg. I’m tapering very very slowly, .5 mg every two weeks this time in hopes I can forego the rebound. I wish I could get off of the steroids. I walk every day, uphills ( net 600 ft elevation change) on trails For 3-4 miles, which has kept me sane, but my exercise otherwise has been sporadic, as I get Severe back pain all too often. Using CBD & Passion flower tea or tincture for sleep, as that is what seems to be a precious item I am not always securing each night.
I have not gotten the flu shot this season, and know I “should” but I really am fearful of the reaction. Rheumatologist says to get it, and I’ve read from others here on the site that they mostly have gotten it. Perhaps later this week.