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Bronchiectasis and Gerd

MAC & Bronchiectasis | Last Active: Sep 18, 2020 | Replies (18)

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@goddard

why is it hard for local docs to work with NJH? I thought NJH prided themselves on working with local docs -- maybe I got that wrong. Im looking for new institution to go to like I said above-- the hospital I have liked have been in LA, NYC and New Hampshire- the one I got the original MAC diagnosis from was in a city where my son lived (LA) but he moved, so I got a 2-fer one by going to the doctor there-- Id go to see my grandchildren , son DIL and also go to good doc I liked, in a smoothly run hospital. I have another son who lives in San Francisco and I'm already a patient at UCSF so I might go there. Another son in Denver-- so NJH would be possibility. I think NJH is very involved in gastro approach, whatever that is?

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Replies to "why is it hard for local docs to work with NJH? I thought NJH prided themselves..."

You misunderstood me...this has nothing to do with NJH...they are excellent and I do not believe I would be alive today if I had not chosen to go there. My new pulmonologist and his associates in my town are extremely excited to work with NJH and have nothing but praise for them. They were very surprised He wasn't working with them, so, this was probably about his ego. He did a terrific job diagnosing my problem but I completely rejected his solution of using the 3 antibiotics because my family has a history of liver disease and my body doesn't always handle antibiotics very well....I could not imagine being on three for an entire year. So I did some research & I found out NJH was supportive in some cases of alternative solutions esp. with patients with GERD because some believe we tend to reinfect ourselves. NJH was willing to work with my local doctor so I sought their advice.
If you notice my comment on sputum cultures? He actually told me cultures were "not the method the school he went to recommended" which I had already researched and I knew was incorrect.... he just wasn't keeping up with current procedures.
At my next visit he mentioned something about "they were starting to use them now...."
It's very important to listen to our doctors but we also have to know what our bodies are capable of.

I think it's a doctor by doctor issue. I have seen 2 pulmonologists and one ID doc in my group practice. The first pulmo fired me because I dared ask him to allow his own ID doc to be consulted! The second pulmo and the ID doc work together and with NJH and my primary provider like a real team! IMHO it's an ego thing.
Sue