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Bronchiectasis and Gerd

MAC & Bronchiectasis | Last Active: Sep 18, 2020 | Replies (18)

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@egayle187

@clpc...I agree with Brenda. GERD is the pathway through which some of us get lung damage. In order to control my MAC and Bronchiectasis, I had to fix my GERD. I had hernia repair, low acid diet, sleeping upright for that. To keep the Bx under control, I use my nebulizer 2x with asthma meds and use postural drainage 2x a day. I took the Big 3 meds and have had no exacerbations of Bx or MAC for 6 years.I used the book, Chronic Cough Enigma by Dr. Jamie Koufman, to discover why I coughed all the time. It has self-tests to help figure where your particular cough comes from.
I understand the reluctance to take the Big 3, however, MAC destroyed one of my lobes and it is dead forever. Keep up with your CT scans.

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Replies to "@clpc...I agree with Brenda. GERD is the pathway through which some of us get lung damage...."

Hello egayle, 3 separate diagnoses (GERD, MAC and Bronchiectasis) and all 3 could be inter-related, a person could very well have all 3, and wonder what order they occurred. Several months ago I posted a link to a good video from NJH, here it is again https://www.youtube.com/watch?v=BZwM3fsTIIY&feature=youtu.be **** I also read that book by Dr Jamie Koufman years ago when all I had was a chronic DRY cough, it was very informative, highly recommend to any one with a chronic cough. In my case I believe the LPR (GERDS) came first then the bronchiectasis and finally the MAC, but who knows for sure. Bill

Thanks. I'll look at the Koufman book. Im looking for new institution to go to, I come from small town where my pcp had never heard of NTM or MAC. I may try UCSF since I hav gone there annually for followup/ review of a cancer I had removed there in 1990s-- but Ive skipped followup there because of covid (2020) and smoke (2019) last two years. I've had pneumonia and pleurisy, but maybe inhalation of stuff was pathway to lung damage also. What I am fascinated about it that my lungs have gotten better very slowly re nodules since going on this replacement gamma globulin, and I"ve only had one respiratory infection (flu B) since I started- its clearly protective. It is from pooled blood supply and so eventually I should be getting plasma with covid antibodies-- I think, if I understand how the immunology works which is fascinating but difficult to Intuit , I think I need an immunology course to understand it. I also had chronic fatigue back in the 1980s and I recall I had low T or B cells, so again. low immunity. My oncologist said dont worry about the low immunity unless to is really really way below ref range, and mine is only about 15% below lowest ref range-- but boy having it up to normal from the addition of infusions has made a world of difference in terms of getting sick, having chills, etc