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Bisphosphonates or Not? Both No Win

Osteoporosis & Bone Health | Last Active: Jan 30, 2022 | Replies (92)

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@catharbert

Hi Migizii, Thank you for sharing your history. Like you I have multiple health issues and I have problems with side effects with almost every drug I take. I tried Eventy for several months and felt bad so my endocrinologist put me on Tymlos which was worse. Now I am on Alendronate (Fosamax) which will not be as effective as the other drugs but it is once a week and the side effect seem to only last about 24 hours after that dose. Several months ago I talked to a represesntative at Mayo Clinic about my polyneuropathy but I never went there. I live in Texas and the pandemic and other factors have prevented me from going. Did you see an endocrinologist at Mayo or did you have a remote consult? I would be interested in hearing more about your experience with Mayo. Any way, I appreciate what you have gone through and that you have shared it with us. Cathy

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Replies to "Hi Migizii, Thank you for sharing your history. Like you I have multiple health issues and..."

Hi Cantcando, I go to Mayo for endocrinology (osteoporosis issues). I went to Mayo once, many years ago and saw a neurologist for my migraines and had a very poor experience. I sought out their patient services, at the time, who sent my concerns directly back to the particular neurologist, who basically wrote me stating he gave me excellent services. I never went back or followed up any further. Now that I am older, perhaps wiser, but a better self-advocate, I would have continued up the chain of command. I have seen so many neurologists in my local community and our “parent” clinic three hours away, I’ve lost track. We lose specialists routinely because of our very cold and isolated location, my guess. I have seen all my specialists in person (except one during the height of the covid outbreak), even though it’s a long drive (but manageable-about 6 hours). I have been there this summer and they take the utmost precautions and you always feel safe while you are there. Thanks for sharing your experiences too and be well!