@sunnyflower @migizii @lioness @dappy @catharbert
The decision on what to do when we discover we have osteoporosis is an incredibly difficult one. I discovered I have somewhat advanced osteoporosis just about a year ago. The endocrinologist I went to wanted me to get a Reclast injection but I was hesitant, I had another health situation that I wanted to address first. Since then I have learned more and more and now am not sure that I want to take one of these drugs. It dawned on me recently that I have had to stop a number of drugs due to difficult, and rare, side-effects so I worry that I could be that 1 in 10,000 with side-effects from these drugs. I had been thinking that I would do Reclast, I don't want to risk having a severe fracture, I have already had a minor upper femur (hip basically) fracture.

I am reading all of these posts hoping they will help me to decide what course to take. I have a DEXA coming up and appointments with two endocrinologists so hopefully something will come out of all of that. I have been supplementing my diet with calcium, vitamin D, and K, and trying to up my protein consumption. I discovered that protein is really just as important as calcium because our bones are half protein. When I tracked my protein consumption I realized I needed to eat more.

I have told my daughter who is in 30s to be pro-active so she will not get herself into this position, but a big contributing factor to my osteoporosis is having to take prednisone due to having had a liver transplant.
JK

Hello Catcando and @migizii, thank you for sharing your stories. Catcando, I have not heard of evenity but just looked it up and found this that I thought you all may like to see. Please forgive if you already know this. "EVENITY is an investigational bone-forming monoclonal antibody and is not approved by any regulatory authority for the treatment of osteoporosis. Jul 12, 2018"

Then I saw Tymlos isn't a Bisphosphonate either and doesn't build bone for more than 2 years.

My Endocrinologists want me to take a bisphosphonate. It appears that they all can have horrible side effects, serious and not, but both miserable and debilitating.

My husband and I have discussed in detail, what it would be like were I to take the medication and get the side effect or not to take it and have another or more fractures.

Because I'm already in such poor health and on 2 immunosuppressants, do I want to take a 3rd and put myself at risk for side effects, among which, although rare, can be femur fractures and/or tumor, debilitating bone /joint /muscle pain, etc.?

I am praying for clear direction from the Lord and the peace of God through Christ which surpasses all human understanding, Philippians 4:7.

Catcando, I too have small fiber polyneuropathy, pretty much head to toe, ad well as a very long list of diseases and conditions. Many of which are painful.

I commend you for your efforts to try to exercise as weight - bearing exercises help strengthen bones.

Our situation is very scary and disconcerting to say the least! For me, the only thing that gets me through the many fires we walk through in this life is my faith in Christ. His immeasurable, free, unmerrited, sacrificial love comforts me. I know He cares deeply about me and knows about every detail and has a plan for my life (Psalm 139:16

That is what helps my mental health in dealing with so many painful afflictions.

I wish the absolute best for each one of you. Warmest regards, Sunny flower. 😊

I also tried Tymlos twice but it was unsuccessful due to muscle pain. This was given to me during my stress fractures that were taking a long time to heal. I haven’t tried Evenity, so this is helpful for me to know about for the future. Who knows? Perhaps there will be something even better?😊