Thank you so much for sharing with me. I have the sweetest endocrinologist in the world! She spent an hour and 20 minutes on the phone with my husband and myself discussing everything you can think of about everything from my health to the different drugs and their side effects and Then followed that with sending me excellent clinical trial studies on the different medications Etc.

Because I am such a complicated patient per what pretty much every specialist and provider that sees me says, and I'm already on so many toxic medicines, it really is a potential no-win for me.

If I do begin a bisphosphonate, it will be my third immunosuppressant drug that I will be on. I used to be on three but had to discontinue the Plaquenil due to it causing some tissue death in my retina. I really don't like being immunosuppressed, especially since I have 19 grandkids, the cutest Petri dishes you ever saw! LOL! My daughter is waiting to see if their latest baby will be approved for adoption but we think she will.

Besides the potential serious side effects, the potential not so serious side effects describe the pain in the muscle joints and bones debilitating. I already have so much of that pain along with my neuropathy pain which is mostly my skin, but I really can't imagine being in more pain! There would be almost no quality of life and I would be totally bed bound.

Were I to break a phone, I would need more care than my husband can give me since he's working. What is the lesser of two evils is the question.

I feel like I have written these things so many times but I can't remember to whom I wrote them? So please forgive me if this is a repeat or multiple repeat.

Take excellent care of yourself and warmest regards, Sunny flower

Jump to this post