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Bisphosphonates or Not? Both No Win

Osteoporosis & Bone Health | Last Active: Jan 30, 2022 | Replies (92)

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@dappy

Hi Sunnyflower. I have osteoporosis and was on all the bisophonates(?sp) and could not tolerate them so went on Prolia. After the first 2 years my Dexa scan showed improvement. I was due my 8th injection in April but did not due to all the COVID that’s a around us and didn’t want to go out. I actually had reservations about getting the injection anyway. Over the last 2 years I’ve developed a bad hip problem. Very painful and it can be from sitting, standing, walking whatever. It hurts every day. I’ve been to orthopedic, chiropractor, and 2 rounds of PT. They have only done x rays and say it may be this or that but nothing conclusive. I go to a new doctor in Oct. hoping he can help me. Is all this from Prolia??? I don’t know but I didn’t have this before but again I’m getting older too. Hope you make the right decision.

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Replies to "Hi Sunnyflower. I have osteoporosis and was on all the bisophonates(?sp) and could not tolerate them..."

Hello Dappy and what a great name! I am so grateful to hear from you and thank you so much for sharing your story.

I just read this morning that if you stop Prolia or I think other bisphosphonates, your risk for fractures increases. Please check with your doctor about this because it can be very serious.

I am very behind on messages and replies so more later but please know I will be praying for you.

Please keep me posted on what you learn and what your doctor says.

Many blessings and peace for your soul, Sunny flower

In reply to @sunflower My decision to pursue medication was based on seeing my aunt as an older person, who was unable to stand up straight and had to live on oxygen as a result of the position her body contorted in from osteoporosis. There were no drugs available when she was old and it remained steadfast in my memory of this wonderful woman, who was a professional ballroom dancer (with her husband) but could no longer enjoy any life outside of their small assisted care setting. She lived a long time this way. She was a small, petite woman (and so am I)....thus, this was my journey....will it be the right one? Who knows....but it will have to be for me....there will not be looking back but only forward to what life has to offer me as I move along in my life.....I’ve had to wrestle with these decisions a long time and I have had a few stress fractures, but otherwise things have been going along...many Bisphosphonates I was unable to tolerate due to migraines, but I think I’ve been on all of them with mixed results. Right now Prolia is what I am using with good results, but that may not be the decision that you reach. Good luck; have faith in your decision; and if a doctor doesn’t feel comfortable working with your decision; I would look for a different one.