← Return to PMR initial diagnosis: Can there be an underlying disease?

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@johnbishop

Hello @frankenstein, Welcome to Mayo Clinic Connect. You will notice we moved your post to an existing discussion "PMR initial diagnosis: Can there be an underlying disease?" so that you can meet other members with similar symptoms/questions. If you click the VIEW & REPLY button at the bottom of the email notification, it will take you to the discussion.

There are a couple of other discussions you might be interested in:
– Polymyalgia Rheumatica (PMR): Meet others & Share Your Story: https://connect.mayoclinic.org/discussion/polymyalgia-rheumatica-pmr-meet-others-share-your-story/
– PMR and Cancer: https://connect.mayoclinic.org/discussion/pmr-and-cancer/

There is some information I found that may help you learn more about the difficulties in diagnosing PMR and why it's best to see a specialist like a rheumatologist. — Polymyalgia rheumatica: pitfalls in diagnosis: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1281460/

You mentioned having more cherry angiomas since the flare up. Here's a 2018 article that has some information – Should I worry about a cherry angioma?: https://www.medicalnewstoday.com/articles/312594

I have no medical background or training but I have had 2 occurrences of PMR that were treated with prednisone starting with a 20 mg dosage. The goal is to control the pain/inflammation with the prednisone and to taper off as soon as possible. The first occurrence of PMR took me 3-1/2 years to taper off, the second time 6 years after it went into remission it took me a year and half to taper off.

Are you able to get a second opinion with a rheumatologist in the UK?

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Replies to "Hello @frankenstein, Welcome to Mayo Clinic Connect. You will notice we moved your post to an..."

Thanks, at the moment in the UK it appears to be extremely hard to get any sort of further diagnosis due to CV-19. I'm surprised that the GP has not offered to have a rheumatologist have a look and I'd hope that he was able to read into what the blood tests were indicating. I may in the next month arrange a further phone appointment and inquire about a rheumy.

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