Hello Karen @karinaph, I would like to welcome you to Mayo Clinic Connect and thank you for the private message. I thought I would answer your private message in this recently created discussion PMR initial diagnosis: Can there be an underlying disease?. If you click the VIEW & REPLY button at the bottom of the email notification it will take you to this discussion where you can meet other members discussing Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA).
You mentioned in your message that you have been diagnosed with PMR and they suspect you have GCT. You are currently on 14 mg of prednisone, tried to taper and symptoms roared back along with GCT. You also mentioned only being able to do Zoom calls with a rheumatologist and have not had any blood tests since Feb. It took me awhile to figure out what you meant by you feel like you are wallowing in the Sargasso Sea 🙂. I didn't know it's the only sea without a land boundary. That's a great way to describe the feeling when PMR or GCA is out of control…ouch!
You also mentioned you were looking for some help in navigating the discussion board. There is a great Get Started on Connect guide that is available by clicking the link in the left column of the footer section on any Connect page. Here is the direct link to the guide – https://connect.mayoclinic.org/get-started-on-connect/
Karen are you also having pain in the temple area, jaw or scalp? Those are symptoms of GCA.