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Neuropathy: Numbness only, no pain

Neuropathy | Last Active: Nov 14 3:29pm | Replies (508)

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@johnbishop

Hi Barry @user_che214927, I have done much of the same things you have except for trying neuroplasticity. I'm doing well without it but I'm keeping an open mind and if I get down I may dig deeper into trying it starting with watching all of the videos to see if I can absorb it without the reading (hate reading technical and lengthy books 🙂) -- TED Talks and YouTube Videos on Neuroplasticity: https://positivepsychology.com/neuroplasticity/#ted-neuroplasticity

1. I'm 77 (Do you remember Cookie, lend me your comb - 77 Sunset Strip 😂 gone are the hair days)
2. Numbness in toes and bottom of feet started in my late 40s
3. Diagnosed by Neurologist with idiopathic Small Fiber PN at 73
4. High Blood Pressure/Hypertension, PMR, Lymphedema, Degenerative Arthritus, Sleep Apnea, BPH - hey, my glass is half full!
5. BP medication pills
6. Condition - better than I deserve! Finally controlling my weight, exercise two to three 30 minutes sessions daily on my Teeter recumbent cross trainer and elliptical, daily back and shoulder PT exercises. Now practicing alternate fasting to lose and then maintain a good weight for myself. Started my weight journey in my 50s at 330 lbs, now weigh 216 lbs with a goal to maintain a weight of 200 lbs. I was a snack-ahololic who ate his fair share of doughnuts back in the day. Sadly I learned too late in life of how it affects your health and I think it's responsible for most if not all of my health conditions. But as my momma always told me, I am a work in progress.

Oh yeah...and I hate wearing compression socks for my lymphedema but it's a small price to pay to keep it under control. The tightness of the compression socks seems to give me some feeling back in my feet. I can actually feel the bottom of the feet when I'm peddling on my cross trainer. Not sure I have any tips for you Barry. At 89, you are doing fantastic and my goal is to get where you are now!

Hoping you have a great weekend Barry!
John

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Replies to "Hi Barry @user_che214927, I have done much of the same things you have except for trying..."

@johnbishop @user_che214927
John, Barry, you both are doing fantastic work on yourselves. Barry you look great, you do too John (in the article Lee linked to). I admire you guys for the work you are doing on yourselves. I have a difficult time with indoor equipment. I get too bored, even with a tv on. So I hope to continue taking exercise outdoors as long as I can. Best, Hank

PS: Barry I have started the brain book by Doige. It starts out interesting from the first page.

@user_che214927 @johnbishop and others, Barry, I'm laughing because I shied away from telling my age to others most of my life. Now, from one 77yr younger to another, John, I can laugh and repeat what another fabulous contributor to the kidney Connect forum has written: "Today is a great day to be alive". Soo true! Yes?

Question for John or another, What to ask neurologist about what specific type of pn I have? All I was told was pn??? I had both the blood/urine and electrode tests but are different ones needed to better define the type of pn?

John, have yet to try compression socks because I don't have the dreaded, painful lymphedema you have. My close friend did find help and relief from the compression adustable arm wraps prescribed for hers. Now wondering if the socks would help my pn too?