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DiscussionResponsive neurostimulation (RNS) as an epilepsy treatment?
Epilepsy & Seizures | Last Active: Nov 17, 2023 | Replies (17)Comment receiving replies
Replies to "@heal33 Good morning, I understand Northwestern is a good hospital it’s ranked number one in Illinois..."
I have focal seizures about 4 times a month. More, as usual, when I am stressed. I have had seizures since 26 years of age. I had one at about 8 years of age (febrile seizure--chicken pox). Drugs have never worked for me I've tried Dilantin, Lamictal, Gabapentin, Keppra (generic) in combination with Lamictal and Tegretol (generic) in combination with Lamictal. I've stayed on Lamictal since 2004 only because it causes the least side effects--only a slight tremor in my mouth which I only notice happening now and then. One doctor told me medications aren't going to work for the epilepsy I have.
I'm 69 years old and sometimes I think if could have a seizure free life with what I have left (sorry to sound depressing) or just keep living with them as I have for the last 43 years. I'm sure my problem isn't as bad as some on this site because they last maybe 15-20 seconds or slightly more. Some are worse than others and they do affect my level of consciousness. I have tried to slow my breathing and keep reciting something over and over. Slowing the breathing seems to help somewhat.
With what you're telling me about results Jake it didn't sound real encouraging but I guess I'll have to ask the doctor when I see him.