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Heart Failure

Heart & Blood Health | Last Active: Sep 12, 2020 | Replies (25)

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@scottij

I have never like responses that start with "I know what you are feeling" because we can never understand what pain means to you both physically and the clear frustration that you are experiencing emotionally. I can tell you that I had good care from many doctors but I never felt hope until I walked into Mayo. The advice I got was consistent and I felt better while waiting for my transplant which happened 8 months ago. My heart was "totally shot" (apparently a medical term). I had similar palpitations as a result of my heart trying to catch up to the needs of the body. I also don't want to minimize your feelings on your EF number. I will share that it is just a number and to not read too much into it. Mine was at 9% and I walked 14,000 steps the day before my transplant.

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Replies to "I have never like responses that start with "I know what you are feeling" because we..."

@scottij First I would like to say I appreciate the way you worded your response. From there, it's not so much that I'm feeling any certain way about my EF I'm just basing my opinion from what other doctors have told me and from what I have read (and was able to understand lol) online. That usually anything under 30 is something to be concerned about and that after my second the doc I dealt with in the hospital refused to let me leave without a life vest. I suppose it wouldn't bother me so much if I was feeling "normal". Just over a year ago I was working 10-12 hours a day in usually outdoor or shop conditions and now I'll wake up at 7:30 for my morning handful of pills and by 10-11 I'm falling asleep where I'm sitting. Things I have always enjoyed doing just seem to take to much out of me to even want to bother. Even just walking around the house I feel my chest start pounding (really don't even need to be walking, has done it twice just typing this) and it's like hard to keep my eyes open. So I know EF is just a number and there are many different factors that will fall into how I feel no matter what that number says. But yes it does get frustrating. I'm not sure if mine is "totally shot" since they haven't told me much of anything. First I heard of heart failure was when the info packet from the company for the new pill i got put on a couple of weeks ago described it as only being used for heart failure and when I brought it up at my next visit he said yes that is why he gave it to me. Almost like I was supposed to know from his 2 minute phone call when he told me the result of my viability test was no viability and to keep my next appointment 2 weeks from then so he could explain it more which consisted of him telling me that whats done and dead is done and dead and that going back in would make no difference and other then the new med there wasn't anything he could do about it. Which is when i decided to seek out Mayo's opinion and help.