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Replies to "Well let me start with thanking everyone who has taken the time to respond so far...."
I have never like responses that start with "I know what you are feeling" because we can never understand what pain means to you both physically and the clear frustration that you are experiencing emotionally. I can tell you that I had good care from many doctors but I never felt hope until I walked into Mayo. The advice I got was consistent and I felt better while waiting for my transplant which happened 8 months ago. My heart was "totally shot" (apparently a medical term). I had similar palpitations as a result of my heart trying to catch up to the needs of the body. I also don't want to minimize your feelings on your EF number. I will share that it is just a number and to not read too much into it. Mine was at 9% and I walked 14,000 steps the day before my transplant.
@shawnb2020 Hi and i am also curious why so long when i went to Mayo Phoenix it was a referral from my Cardiologist and i actually went direct by Ambulance. Now i had to wait for the insurance approval for my transplant but they started the process just on my doctors referral. At first it was only an evaluation and i went home after the eval which was inpatient but my symptoms got worse and i went back thru the Mayo er and never left until it i ended up with my transplant. But during that period waiting to get approval from the Insurance i was already at Mayo. Now at the time i had Blue Cross Blue Shield i don't know if that made any difference or not. So my advice would be to go to the closest ER whenever the symptoms appear. I was already an established patient with a history of Heart issues. Im wondering now if my cardiologist at the time pushed it thru. I'm not sure about that part. Hang in there it will be worth it. I am so thankful for Mayo and what they did for me.
Have a Blessed Day
Dana