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Chest and upper back pain with bronchiectasis and pseudomonas
MAC & Bronchiectasis | Last Active: Feb 1 2:15pm | Replies (131)Comment receiving replies
Hello Maryann. I am glad that you posted and joined our conversations. We learn so much from each other here. Have you had a chance to read over older posts yet? A member, @kateman has posted a treasure trove of good info. You can go to the magnifying glass icon at the top of this page and type in her @kateman name and pull up all that she has posted. We have our Discussion board list of topics that you can scroll through forever and pick up conversations that you may find helpful too. That is located on the opening page for this group. I see that you are now taking prednisone; that should help to make you feel better soon. It always did wonders for me. I hope that you are able to avoid the smoke there in Ca. that has to be miserable. Are you able to go someplace else to get away from the smoke?
Replies to "Hello Maryann. I am glad that you posted and joined our conversations. We learn so much..."
Hi Terri, Thank you for the welcome along with the info on where to look for more info... I keep having to remind myself that knowledge is power and to take it one step at a time so as to not be overwhelmed. I believe this group will help with just that. From the start, my doctor advised me not to google info on Bronchiectasis, etc., as she said a majority of what comes up is inaccurate, etc., however, I had already done so and it was scary to say the least. While at my bronchoscopy a few weeks back, I told her about info found on Mayo Clinic site and this group, to which she gave a double thumbs up!!
Still waiting for MAC results and may need to go in again for biopsies as we didn’t do with bronchoscopy .... which was mine, not my doctor’s decision, as at the time, I couldn’t take the chance of having to stay in hospital should a complication arise ... I am a single parent, complicated by Covid-19 and my being, according to my doctor, at very high risk (As I assume all of us with this condition are.) Anyway, my doctor had said that the bronchoscopy without biopsy has about an 80% chance of diagnosing MAC, but if nothing appears (Grows) then we still won’t know for sure until I am able to have biopsy done. (Haven’t had luck producing sputum cultures.) As for the smoke, unfortunately there’s no escape at this time, but hopefully we’ll see some relief soon.
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@windwalker and @maysrx ....Teri, wasn't it @katemn? You wrote @kateman. Nan